THANK YOU AGAIN FOR THE UPLIFTING AND MEANINGFUL COMMENTS!!
Saturday. No doctor visits, no tests today, trying to relax. I have to say it is not easy. There are times when ridding your mind of doubts should come easily, but do not. Weeks of despair don't disappear overnight, unanswered questions and lack of confidence in information remain. Normal I suppose. But I won't feel safe in this retraction until I have blood proof that Covid is the cause. Are they sure that it is not the beginning of IPF? Am I being foolish? Cautious? Skeptical? Why didn't a doctor (not the office staff) speak with me about what to expect? Is this lung involvement at the end of the virus? Start? Does it matter? Are the ground glass particles what fill with fluid quickly and become threatening as we so often hear? Should I be looking for symptoms? Should I be quarantined if I am to be tested again? No one said Mark should be. As one crisis seemed to resolve, should I be nonchalant about the lesser? I thought the shaky and breathless mornings were from anxiety, but continued today. I feel someone should be offering answers and at the very least, informing me of changes or symptoms to be wary of. So as the fog is lifting, the questions keep coming.
Holding a needle is still tricky, a steady hand has not returned. I managed to start Ewe & Eye's Christmas Sampler and already need to modify since I am two rows wider. No big deal. Changed the roof color to brown instead of green, and should have chosen a darker brown for the stag. No big deal #2. Easy fix. Ranger brand archival ink to the rescue. I just test on a cloth and very lightly brush the top of the already stitched threads to slightly darken and shade. I use an artist's small flat angled brush for excellent control.
My giveaway was to be an Erica Michael A&E large berry chart I recently purchased. but even though I test negative, I'm sure many of you may not be comfortable receiving it. I use an aerosol spray (carefully as ink runs) and wipe the plastic bags for anything I mail, also for packages delivered to me. But I understand it may limit participation ..... so ..... something not from my home would be best. Twenty dollar gift certificate. I love 123stitch, but as long as you verify that your shop choice offers GCs, you can choose. Monday evening at 8pm EST, Random will put a smile on someone's face. Leave your initials in your comment if anonymous to enter or enter by email.
I hope your weekend is a good one as we crawl towards spring.
Stay safe!!
**********************
47 comments:
Hi Marley!
Keep your chin up. You bring so much enjoyment to everyone we want nothing more than good news for you!
Hugs, Kathy Kelly
KK
This is a definite WOW moment!
I hope you feel better soon and get the answers you seek. I will keep you in my prayers.
You are staying in my prayers Toots.
Seems a little crazy that YOU are offering a gift, but okay.
VN
I’d love a chance at winning a gift card. Hope you get straight answers very soon. A roller coaster of emotions for sure
Kimm
I am so relieved! Good for you that you insisted on other tests suspecting something else. We were in a similar situation with our eight year old. Can you imagine? Ordering this test and another CT and yet another round of antibiotics at $7000 per shot. It went on for 10 days. Cancer in the lymph nodes in his neck......long story short on the second weekend they were going to do a spinal tap and I hit the ceiling! Our son was terrified and because he was in the hospital over two weekends he had seen multiple doctors from various on-call clinics. I demanded to see the test results from the first doctor's visit. Turns out they never looked at the original STREP TEST. It was strep and the medication was $2.00 for 10 days worth and he was fine. The worst time in our lives. He is a pediatrician now. WHAT??? A PERSON HAS TO BE THEIR OWN ADVOCATE AND EXPLORE ALL THE POSSIBILITIES ON YOUR OWN.
I would consider calling the state medical licensing board (for a more appropriate time) to file a formal complaint. There is no justification if indeed you are dealing with anything COVID-related that they are ignoring that there is more than 1 member in your home as well as not giving you more information/testing for confirmation etc. Definitely keeping you in my prayers!!!!
LM
Sorry to hear of all your woes. I really enjoy reading your blog, the good along with all your help problems. Keep your chin up!!!!!
So sorry to hear that your doctor was not very communicative. Stay strong. There are many of us who are praying for you and wishing your health problems resolve quickly. I would love to be entered into your giveaway. Either item is fine by me as I quarantine most of my mail for a week anyway.....or wipe it done thoroughly. Hugs.
good news good give away
dq
Marley,
Keep your faith, we'll be praying for you. Be positive.
Love your blog and your stitching. So very thoughtful of you
to offer a giveaway.
Many blessings....
This is so generous of you. I will leave the giveaway to others and just say how relieved and happy for you I am. I'm sure your mind must be going loopy so I wish you all the best.
There are many to answer for the hell you've been through, but for now, take the
weekend and recover and be grateful for the good news. You can dissect and take
revenge later. Would the "shakiness' have anything to do with any medication you
take, or perhaps the recovery from that horrible news will take a bit of time to
settle in. In any case, continued prayers for you in the hope ALL will be well.
Marly, I have read that some folks who had Covid had residual shortness of breath. The shakiness could be from anxiety that you can feel from shortened breath plus you were hit with anxiety causing situation/information and it throws your body into overdrive, a fight or flight thing, adrenaline rushes. Vicious cycle. Do what makes you happy/comfortable, let medicine work. We will be here cheering you on.
:) I never thought I would be happy to hear someone has Covid. It souunds better than your 1st diagnosis. I will continue my prayers for you. I hope you have a complete recovery. Take care of yourself.
You are kind to offer a giveaway. CHM
I am so thrilled for you for this better result but still a lot of worrying questions as you say. Please do look after yourself and thanks for hosting a giveaway. Please enter me, KDE
Hopefully you will get some answers to your questions. Such a sweet thing for you to offer the gift card. DG
You often mention Mark. He seems to be very thoughtful and very helpful. Who exactly is Mark? Miriam
One day at a time. Sometimes that’s all you can do. Try to stay positive!
Kind of feel guilty but can use a little fun right now. AK
Take a deep breath. Don't start imagining the worse. You were diagnosed with Covid pneumonia. Don't let yourself be scared into thinking you have the beginning IPF. Trust this latest diagnosis. The shaky and breathless mornings are because of the pneumonia and quite honestly probably some anxiety. Who wouldn't feel anxious after what you've been through. You'll probably feel like that for awhile. You said you had weeks of despair, the anxiety will not disappear overnight. If you would feel better hearing you have Covid pneumonia from your doctor rather than the staff call your doctor and talk to him. Maybe he can put your mind at ease. I know this is scary as hell but trust that everything will be fine in the end. God will take care of you (and your husband).
Continuing to send prayers and well wishes to you, Marly and i hope you get your answers for all your questions.
AS
I hope and pray that with time you'll get all of the answers that are plaguing your sweet brain. While we are being held prisoner (that's the way I feel) in our homes, our minds can run wild causing anxiety galore.
Please take time for yourself to do something, eat something, sleep, look at the snow, cross stitch, enjoy a nice book, something to think about that is positive.
So much going on in our country............everything turned upside down.
You are so generous to want to give to someone at this time in your life. But, that's you, sweet friend.
Thoughts and prayers, hugs from afar and love !
Charlotte in Va.
OH, Happy Valentine's Day to you and Mark.
Charlotte in Va.
I hope you get more clear answers, how scary.
So generous of you to offer a gift card.
Marilyn
I hope they can narrow this down for you and you begin to feel better. Sending good thoughts your way...have a wonderful day and thank you for the chance to win your give-a way!
Patti Levine...PL
What a roller coaster you have been on. You are in my thoughts! Laura LS
I'm amazed that you are able to think of others while being plagued by worrisome thoughts of your own, but that's typical of how you've always been -- thinking of others. A medical doctor should sit down with you and explain what's going on instead of leaving you in limbo with questions only the medical people should be able to answer. I hope you will soon find peace and be able to put all this behind you. I'm sure the person who receives the gift card will be grateful for your kindness and generosity.
Happy Valentine's Day!!
Jan
I'm always up for a give-away. Are you sure we shouldn't be passing something on to you instead?
Jackie
I think the problem with some Drs is that they expect you to look everything up on the web for yourself. Years ago I had a small stroke. after second day in hospital I had a nurse come in to say I would be leaving tomorrow and did have all the info. I said what info? She said they gave you no information...she proceeded to give me a small folder full of stroke info. When I saw my "regular Dr. I said why did all Dr's not give printed info? He said most believe you will just look up on the web! This is wrong, we need to read this stuff for true facts. So Marly you need to do all the searching for info yourself. My fav is Mayo Clinic site. Perhaps someone who follows you can help there must be nurses who are familiar with this . BTW I agree isn't a covid diagnosis wonderful. Stay well
Marly: I am so sorry you are having to go through so much, it pains my heart, you are a rock on Blogland, a very strong Lady, I just wish you felt better.
I look forward to your posts, so much, you always put a smile on my face, I hope you can get the results soon and find a cure or a better way to handle what is happening.
I do pray for everyone who is not feeling well, I will continue to keep you in my prayers.
I so love the Christmas design, so sweet.
Hugs and even bigger hugs
Catherine
Happy, Happy Valentine's Day...sending you love and peace! Patricia
Marly, I hope you can get all the answers to your questions. I'm so sorry for the COVID diagnosis but still so thankful that it wasn't IPF. I so enjoy reading your blog and seeing your beautiful stitching. I hope you can get some rest, relax and find some peace and are feeling better soon. Happy Valentine's Day to you and your honey! Take care.....Cherie in WI. CLP
Yeah!!! It's just one foot in front of the other and day by day in these crazy days. Glad you had better news than expected. Praying for quick recovery from the big C.
So glad your prognosis is better now, I would have truly missed your blog, especially the crab ass! You bring joy to a lot of lives, blessings for your recovery!I would be honored to win a chart from you!
Happy Valentines Day! I hope you start to feel better soon. Hugs,
szil949@yahoo.com
Glad to hear that you are at least on a trail with a better outcome. Be patient with yourself as you heal. I would write all of your questions down and ask and insist on answers when they call you with your results. Thank you for the fun of participating in a random giveaway.
Your generosity is greatly appreciated. Please put my name in the proverbial hat. Thank you! Praying for medical clarity ASAP and best outcomes.
Hang in there, Marly--I hope you get the confirmation soon. I do understand that it will take time to feel yourself again after a false diagnosis like you received. Hope you don't get too much snow, too--what a winter! Take care now... ♥
I know I should be reassuring you and telling you to not letting all these doubts assault you but I know too well that my mind would be running amuck with questions and what-if's as well. I think you need to write down all your concerns/questions and then have a little tete-a-tete with your doctor. You make my progress stitching laughable...and you technically have a handicap. Sigh. Very generous giveaway...but I would have no concerns about receiving something from your home LOL. Not much...including germs....survive -30º. ~Robin~
Thank you for the give away. Include me please.
I appreciate your candidness of your situation and the description of your symptoms, it is informative and helpful. Thank you.
Hopefully, if you do have covid, it is a mild case. Take care. My best wishes for your recovery.
Hello,
Thanks for offering this giveaway! I'd be thrilled to win that $20 gift certificate. I cried when I got your devastating email regarding your IPF diagnosis & was much relieved when the second one popped up with much better news.
If this helps any, four years ago I was in a clinical trial for RinVoq, the new rheumatoid arthritis drug (their ads are always on TV lately), but after 6 months of complete RA remission, the drug caused my intestines to rupture. I threw up black blood in the researcher's office (thankfully right across from our nearest hospital) & promptly passed out. They got me to the ER & realized I was dying. I had no immune system due to the RinVoq. I was in a coma on a ventilator for over a month, with my lungs & kidneys in total failure. The docs kept telling my poor Mike that they were sorry, but I wouldn't be able to survive. I was in the hospital for 70 (!!!) days, during which time I developed a DVT in my pelvis, Type 2 diabetes, blood clots in both thighs & one calf, & thyroid issues. Lastly, I developed sepsis in my 12-inch torso incision & had to wear a WoundVac. They put an IVC mesh filter into my chest for the DVT; that's when they discovered that I had contracted C-Diff, so into isolation I went. I had to learn how to sip, swallow, eat, drink, talk without gasping, hold my head up, walk, & care for myself. I honestly thought I'd NEVER get out of that hospital!
When they finally released me, I came home with both a Rollator & a wheelchair, as I still couldn't walk independently. But I was determined to become independent again; asking anyone for help was a foreign concept to me. As I slowly regained strength & mobility, that Rollator turned into a cat toy & perch for our 7 rescued cats & our 3 rescued chickens. I had to endure two more major surgeries to put myself back to rights again. Now, four years later, I've completely recovered. My dear departed mom always said that I was too hard-headed & stubborn to die, & I just proved her right! Hopefully you have that same fighting spirit & determination (notice that I didn't say hard-headed & stubborn?), so you'll bounce back too.
Anyway, you're in my thoughts & prayers.
Take care of yourself & keep on stitching!
With much affection & admiration,
Teresa Lass
P.S. I tried to email you using the link you provided, but my email bounced back as undeliverable. Just thought you should know that your link isn’t working!
Hope you are feeling better now!
Marly, it is absolutely normal to be plagued by so many questions, and you deserve the opportunity to be able to sit with a professional and be able to ask all of them, discuss and explore the answers along with your fears and concerns. My opinion is that I still believe you should consult with doctors outside of your immediate area who appear to be either slightly inept, or at the very least, more than slightly insensitive. take care- dh
really so happy for the good news
take care of you and stay happy
kisses from burgondy
I certainly can understand your questions and concerns.
Post a Comment