Last night, Carole called to tell us they were inserting an IABP - intra-aortic balloon pump and I'm glad she did. We did not have any other notification. A short time later I checked the MyChart site and it was a success. Mark spoke with her an hour after insertion, she was not as breathless, reduced meds, higher BP, and feeling safer. But since the phone rang at 7am and we saw it was the Clinic, I have not been able to breathe comfortably and still trying to calm my stomach. So many of you have also dealt with this same anxiety, third time in six years of fearing these calls for us. New doctor for the weekend reported that she is continuing to do well, kidney function improved slightly, still seeing things and recites her vivid dreams during sleep. I talked to Carole this morning, extremely grateful for their care and this device. She must lay flat for 3 days, very difficult to eat, tubing from it taped to the leg, a few others poking out of neck and behind ear, extreme pain in her feet which no one has been able to diagnosis, but grateful for her misery. I do hope to hear a strong and sensible voice in another day or two, it hasn't even been 24 hours.
This device is used for a number of heart issues, such as Carole's cardiogenic shock. Very often, learning from online sites whether CC, Mayo, Hopkins, AMA, and so many others, is very scary. There are risks - clots, strokes, malfunction, but you have a choice to follow the provider's advice or possibly die. We are all relieved, accepting the benefits over the risks, hoping this will give her strength and time for doctors to create a medication plan. Never knew of this device, and it's pretty darn slick. It is programed for the balloon to inflate and push the blood flow toward your coronary arteries. When the heart contracts, the balloon deflates and allows more blood to be pumped with less work. Controls offer testing and needs for each patient, such as reducing the number of inflations or pausing to test the heart strength before removal, and we were told it could stay in for a month. Finally some hope. But still cautious and fearful. The infection is not a UTI, still extreme pain in her feet, no answers on either yet.
We're not quite as confident and cocky as this guy. Yet.
Well this is unnerving. I went to Photo Gallery to upload another turkey, and this appeared on my screen. Looking directly at me!!!
Edit - when I saw Robin's comment, I realized I failed to mention the woman looking right at me from my screen is my sister!! I guess that would explain my shock.
I've never seen this before, but more disturbing is how it just appeared when I opened my photo program, which I did yesterday and it was not there!! The source is not specified, file location is my desktop (nothing downloaded at specified time). This appears to be the foyer in Cleveland, possibly the first visit for ID? Date shows 3/18/21 (obviously not when created) when she was tubed to a bed in ICU. There was CC website maintenance early morning and the site was down, maybe that had something to do with it. Bottom rung is where I sit regarding tech knowledge and I'm sure there is an explanation. Regardless, can you imagine my shock when she appeared on my screen? Yoi. Good thing I postponed my heart monitor or it would have sent an ambulance.
In case it is CC property, I plan to delete it from here shortly.
Be well, safe, enjoy your weekend.
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10 comments:
Some promising good news of Carole and I look forward to hearing of more progress in the days ahead. I just wish all your concerns ( Carole, kitties and yourself) can ease. I miss your humorous remarks and hope they appear again soon :).
So many of us are thinking of you and look forward to continued news of Carole gaining strength and of you having calmer days.
Marly, so glad you got some good news on Carole. I've been there too, where I've been afraid to answer my phone. Try to take in the positive news and relax a bit.
As for the computer issue, I'm as un-techy as they come, and that would totally freak me out. I'd be hitting "delete" as quickly as possible!
Hope you're having some spring-like weather in PA. I'll continue to pray for that miracle and keep you close in thought. Cherie in WI
Good to read some good new in the Carole camp. I've never heard of that device but it does sound slick. I am amazed that Carole is well enough and lucid enough to make phone calls and tell you about the procedure, etc. Can't help you with the photo...I take it it is no one you know? I have saved photos and then later when I access them, it is a totally different thing... Usually the "transformation" occurs several months or years after the photo was saved. I had theorized that the original photo perhaps had been removed from wherever I had saved it from, but it certainly doesn't explain why a totally different and unrelated photo (that I've never seen before) would take its place...and it doesn't explain your phenomena. Just another reason to be a paranoid conspiracy theorist on my part. 😳 ~Robin~
So thankful for your good news.
I’m hoping the good news continues.
So glad you got some good news regarding your sister. I don't think that picture of Carole was an accident, I think it was God's way of telling you she is going to be okay. He works in mysterious ways. Have faith. Still praying for her.
The good news about Carole starts to come in! So glad to hear she phoned you herself!
Strange things happen with the picture of Carole--no idea how that is possible. Perhaps a sign to tell you she will be okay.
Take care of yourself and hope that Bud will have some food now your concerns about Carole are a little more less.
Lots of love, Truus from Holland
This news seems to me to be a semi-miracle. What a difference a few days makes. So glad Carole could make the call herself.
Will continue prayers for more good news. She surely has been through tooo much and you too as her sister. She's a fighter !
Praying for Bud too.
Stay strong, hopeful and be well.
Love and prayers from Virginia.
Charlotte
Marly: Wow what a roller coaster this has been for both of you.
I am wondering if they tested her feet for neuropathy, many meds can cause this problem.
I am happy she is able to breath better and her kidney function is better.
Wow what a strange thing to have that photo appear, I had that happen once to me with my dog a photo I was sure I did not take.
Have a wonderful day.
Catherine
So glad there is some good news regarding Carole and I hope there is more to come!
xoxo
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