I just talked to carole's nurse. Carole is critical and they said we were called at 5pm but there is no number from the clinic shown on our phone. So Mark called and verified it is correct. She said we may get a call during the night. I'm having him take care of verbal tasks because I start crying and no one can understand). They just can't raise pressure and she arrived coherent, mobile, alert, breathing. Can no longer walk and they (like here) do not know why her feet are so painful and swollen they can't be touched, sharp pains to numb, how this all started. And now she is immobile, gasping, seeing things, and making no sense. Matter of days. I was there with her twice during failure and never saw this. They have no idea about the infection or where so broad spectrum will be continued. I asked the nurse why she never had a low BP problem with other infections from pneumonia to cellulitis. ???? She doesn't want to but informed us that she may call for the balloon pump again, during the night or tomorrow. The two new drugs (one begins with L another N) to help pumping and raise pressure are what caused her crisis. Six days of great decline and I know this is possible with heart failure, but so many of my questions can't be answered and that is very frustrating. Would answers make a difference? Only for my sanity, not her health. Best nurses, docs, and hospital, but you have to excuse me after suffering with my misdiagnosis, my father's slow suffocation for weeks when a pulmonologist failed to recognize a pulmonary embolism causing his death, Chris failing to be diagnosed until 22 for his Type 1 diabetes after many hospitalizations telling Carole he eats too many sweets, my biopsy showing cancer and after ripping out an organ, oops. This is why I get very nervous when they (even the best) cannot give me a verified reason. But that's medicine. More miracles than mishaps.
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24 comments:
All I can say is hold on. I pray for improvement.
Marly, I'm praying for Carole and for you, Mark and your family. I can't imagine how difficult this is to be at home and not with her. My mom was confused and delusional when she had urinary infections. So the infection could be causing this in Carole. Praying for a miracle....Cherie in WI
Praying for you and yours for strength. Place Carole in God's hands, Marly. He loves her and is her father. Hugs.
When you need someone badly it is sad because you can’t go. It puts more stress on the patient and visitor. I wish the best for you and your sister.
COURAGE POUR TOUTES CES EPREUVES JE PENSE BIEN A VOUS
Sending hugs and prayers for you and Carole.
Do hope there will be a solution very soon for her condition.
Big hug ,Truus from Holland
Sadness is filling your heart and I'm so so sorry. We continue to send prayers to you and your family all day, every day. I hope you know that you are loved by so very many of us who are your needlework family.
Hugs, Love and Prayers
🙏🏻♥️
Hold on, Marly and know that God knows best.
John used to say that doctors know what is going on but don't always tell the patient or the family. He went through so much with his enlarged heart and two open heart surgeries. I can totally understand how you're feeling........just plain helpless.
A week or so before my Mom died, she said she saw a figure in a white robe at the foot of her bed.
Prayers for a miracle for Carole.
Praying that Carole is being kept comfortable.
God bless Carole and you with peace.
Sending thoughts and prayers.
Charlotte in Va.
Thank goodness Mark is there to support you now. Take a minute here and there to close your eyes and breathe deep and slow. 😔
So very sad about this development. I am not a religious person so miracles from above I do not believe in. I do believe in people and inner strength, You all need to stay strong and hope Carole can show improvement soon. I can speak for all I think when I say we wish we could all give you hugs. Take a minute go outside and take a big breath and hope.
I got no answers. I wish I did. After so many bad experiences with doctors, I understand your distrust and dismay at what's happening now. All I can do is send good thoughts and hope karma recognizes all the good you've done for your family, and gives you a break. (((hugs)))
All I can say is I am still praying. Make sure you do too. God bless you all. I am so very sorry my friend.
Sending prayers for you, Carole, Mark, the kitties and Carole's family. This is so hard and I am so sorry.
Praying for you and your family
Oh, Marly... what can I say? Just know you are in my thoughts and prayers...
I have mentioned before that I am an advanced practice nurse. I have worked in intensive care units for most of my career. There is little I have not seen. That said, sometimes there are no answers. Sometimes it makes no sense and treatments that should work don't for one reason or another. Many times I prayed over my patients. But God's will is just that. Hopefully, her care will support her and she will improve. My heart breaks for you. I have lived this as well. You are in my thoughts and prayers, caring for yourself at this time is essential because there is little you can do to change Carole's situation. An overwhelming infection stresses every major organ. She has a battle ahead and your strength is important too.
I haven’t checked blogger in a while and am saddened to read this about Carole. My prayers for healing go out for your sister. Prayers for strength to you and your family.
Keeping you all in my prayers.
Wishing all of you strength and grace and you navigate this difficult and terrifying time. Rely on others as much as possible and remember to take care of you.
Marly, thinking of you all. I know it is hard to understand all this. Just went through similar with my mom, she had dementia. I am a nurse and I had hard time understanding. It is different when they are your family. A friend gave me a good example. A tennis ball bounces high when you first drop it and each succeeding bounce doesn't bounce as high. It seems with folks who are older and have chronic conditions each time they get sick or a crisis they don't bounce as high as they did when first got sick. You have and are doing the best you can. Good thoughts and wishes to you all.
Marly dear ~ I cannot think of anyone who has been more devoted than you have to
Carole and her Family. That being said, that nurse attending her seems to be a savvy and dedicated lady. Let her be your monitor and caregiver of Carole, while you gather in your strength and momentum. The doctors may just hit upon the solution
and recover Carole from that state. Please believe that God will allow only what is
best for Carole...and we should endeavor to trust in His will. I pray you peace and courage, as well as the spunk you always possessed. Blessings, dear friend.
Ahhhgg....your pain, anguish and helplessness is palpable in your words dear Marly. I am so sorry for you. I continue to send up healing thoughts and pray for wisdom, insight and skill of her providers to bring her through this. ~Robin~
Very sorry to hear this Marly! You will be in my prayers!
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