for the emails, anonymous gifts, concern, and prayers. I thought I would update rather than reply by individual emails (with this hand, once and done), or with my new baby stylus (thank you!) for a phone that needs minutes reloaded. What a time saver that has been. Using a precise point instead of a fat bent finger has prevented medical updates from being sent to Dominos, hair stylist, tanning salon, and a few others.
She has improved and recovered somewhat, in transitional care, soon to be sent to a SNF with extreme pain continuing. I was first asked why I wasn't told that she will probably not survive, and now told if she doesn't take the risk she'll die anyway. Tact would have been appreciated. Amputation is an option, wait until bad enough for hospice, or take a chance. Chance. But when? It's a long and tedious route these weeks with no answers. I am making arrangements for CC procedures, but with their load of patients, it doesn't come quickly. I've been scolded, insulted, and yelled at by providers and my sister, and I wish there was someone to hand it all to, but there isn't. Her son has difficulty interpreting as if dyslexia has taken over his entire body, and I am exhausted. Ativan to help calm the strong PVCs that prevent deep sleep combined with 5am calls from her doctor, has me in bed hours earlier than ever before.
That shortens stitching time and two fingers flailing like whirlygigs on a shaky hand already saddled with bent and triggered others isn't helping. Some thread colors were slightly changed in the body, but not by much (darker teal and gold) and I was surprised because the chart photo looks very drab. I do like my changes in flower color but maybe it wasn't necessary. Too late. I want to order a few samplers and Nan's pears are a must have. Maybe this evening. So much to do, and it seems nothing is ever accomplished.
Thanks again for keeping in touch to send your prayers and caring thoughts, greatly appreciated.
**********************
25 comments:
Thank you for the update. I have been wondering. I am praying. God bless you my friend.
Marly, thank you for the update. Continuing to pray for you, your sister, your family.
Thanks for the update. I, and I'm sure many others, have been thinking about you and your sister and wondering how things were going. Continuing to send positive thoughts.
Thanks of the update. I have been thinking about you as I go through my own Medicaid nightmare with my mother. Your situation is much worse though and I feel for you. Sending prayers.
Bless your heart, Marly dear. Prayers are surrounding you and Carole and may you
be given proper answers and directions as to how to proceed soon as possible. In the
meantime, please take care of yourself.
What a hellish situation. I am heart-aching and enraged on your behalf, I can only imagine how you feel. I honestly feel many health care providers have used the upheaval of a "pandemic" to revert to their true natures: unempathetic, uncaring, hostile, and hating the fact that their salary depends on giving care to other humans.
What a messed-up world this is.
I wish you knew how dearly you are loved. Prayers continue for you and yours. It's a mell of a hess.
You have been through a terrible time. My prayers are still going your way!
Still thinking of you. Still praying for you. Still praying for Carole.
Thank you for your update. A big big hug for you.
Always thinking of you and Carole and praying.
Lots of love, Truus from Holland
Thank you for the update. Thinking of you
Heartfelt sympathy for what both you and Carole are going through.
You both have been in my thoughts and prayers.
Sending love, concern, hugs and prayers.
Take care of yourself.
Charlotte in Va.
Prayers and more prayers will continue during each and every day.
All are so blessed to have you there fighting for them and helping with each and every task at hand. So very sorry that your discomfort continues too. Hoping that all find pain relief and comfort.
hugs and prayers always
Thank you for the update! Will continue to pray for your family daily. It seems that as we age instead of life getting easier it tends to get more difficult. These are definitely not the golden years, I call them the rusty squeaky years. My husband has many of the same issues as Carol and I feel like we always need a patient advocate (usually it is me) to help him understand what is going on. Be strong and know that you are being lifted up by many. Love you!
Thank you for taking time to give us an update. We've all been wondering how things are. There are some tough decisions to be made regarding Carole's care. And it seems to be a damned if you do, damned if you don't situation. Even if the health care people in your area are stressed due to the virus situation, it's no reason to take it out on you. They are supposed to be the professionals, even if you are not understanding treatment options and the outcome possibilities (it's their job to make sure you do), don't understand the best options for Carole's care going forward (again - their job to know and explain). You are doing a great job dealing with Carole's situation (have been for years), even if you don't think you are sometimes.
Broken record time - please make sure to take care of yourself - physically, mentally, and emotionally. Your time with needle in hand might seem to be a waste of time to non-stitchers, but we all know better. It's even more important now than ever for you. If you are super stressed, get a piece of wood, write whoever you're pissed at on it, take it outside, and beat the snot out of it with a hammer while screaming. This would be far better than holding it all in or having it explode at the wrong time or at the wrong people, including yourself or Mark. Then go take a lie-down and a nap. Or laugh at the absurdity of it all.
(((hugs)))
Prayers are with you.
Hugs
Rose
Good to hear from you, sorry things are so difficult. Stay strong. Life gives us so much, we often don't know how to proceed. Sometimes just some quiet time can help. Even if it is just 10 minutes.
As an FYI that may or may not help with the tongue fissures. I discovered that my toothpaste was making it much, much worse. I changed to Arm and Hammer Baking soda, in addition, I added tepid salt water rinses. It worked fairly well. Not gone, but much improved. I know you are weary of everyone's cures, but I thought I would mention it.
Thank you for the update. Bless you. Rest as you can. This sounds stupid but does work, we know a teeny bit about unrelenting worries. When you are out driving stop somewhere and literally open your car door and in your mind throw out those worries. Close the door, and drive away leaving them there. For the next little while just remember you threw them away they are not with you and don't think or dwell on them period. It may be only a few minutes, but for that brief time they are out of you life. It lightens the load, honestly just to get them out of your head for a little bit.
If you don't drive then toss them out with the cat poop, but for your own well being get rid of them whenever you can. Even for a few minutes. It could save your sanity in this terrible sesson you are in.
Also if you can stand it, try a teeny bit of organic cocoanut oil, or extra virgin olive oil on the fissures. It is very healing and might help even a little. Brush your teeth woth the cocoanut oil and a tiny bit of pink salt. It is so much healthier than toothpaste.
So good to hear from you and I hope Carole can find some relief from all her pain. And then there's YOU who has been a saint taking on all that you have as you continue having your own aches and pains.
I'm glad to see you can do a little stitching and your sampler is coming along beautifully.
Am thinking of you and your family plus those pussy cats.
Happy to hear Carole is doing a bit better. I hope you are, too.
Hugs and xoxo
Thank you for the Update.
Continuing to have you in my prayers and thoughts.
Lots of love from Germany
Amara
We are all continuing prayers for you, Marley! I live near a convent and have asked for their prayers also on your behalf. So St. Mary's congregation of the Blessed Mother is praying for you and Carole. I admire your efforts on behalf of your sister. Rest when you can, this is a marathon. Hugs.
Marly: What a hassle to have to go through all this, I am so sorry.
I will keep you in my prayers daily.
Petey is so cute.
Catherine
Thank you for bringing us up to date. We all hope she gets better. Take care of yourself and keep on stitching.
I've been thinking about you and Carole so much, Marly, and really appreciate you taking the time to update all of us. Even a bit of improvement is good news and I hope and pray she continues to do better. She sure has a lot of folks praying for her and sending positive thoughts. And you do, as well, my friend ♥
Post a Comment