Change of plans of course

Greetings folks.  I got my Barrick charts today.  Wow.  So nice to have full size quality paper and print.  I plan to start one tonight.  If I can get the chocolate off my fingers. 

 

First off I want to thank everyone once again for support and concern and helpful suggestions.  There are several reasons we are staying here in this Steward facility, the first being Carole will not go out of town.  She has one son that works shifts and also volunteers (fireman).  He is lucky to catch a few hours sleep without interruption.  She has one sister (who is brilliant... well..  used to be) and one brother (obsessive personality is putting it mildly) and one brother in law.  To be alone a few hours away is very scary to her and with her health condition, does not want to be in a position that her son or we could not get to her if an emergency situation arose.  We are all only 15 minutes away here and that is comforting to her.  And us.  Dr. Sachdeva and Dr. Vallabh are very fine surgeons with excellent reputations that have treated family previously.  We are very lucky to have them both.  Her family doctor has been a Godsend to her and other family members for almost 40 years and treats us like his own family.  The mix ups and errors and rudeness are not as important as the people actually saving your life.  I found out that there is a nationwide shortage of Ativan!  It's not just the hospital, no one around here has any.  So I took her some of mine which they allowed.  The gallbladder removal is Wednesday, nothing tomorrow, because that surgeon is on vacation as we thought, but were told otherwise for days.  The process will be backward, gallbladder first, stones the next week, but that is what it must be.  Good.  She will have a week between anesthesias.  Hopefully the organ will not burst or disintegrate upon removal and that will go smoothly, and she will be monitored and dosed to wake from the surgery.  After the PCP, cardiologist, gastro, and pulmonary people said they are at a loss to understand the shortness of breath, I did my own research.  It seems a diseased/inflamed/enlarged gallbladder and complicated by blocked ducts can cause gastritis, which bloats the abdomen, puts pressure on the diaphragm, and can cause this.  It's the best I got!   Forums with other patients have shown this is common and many have claimed to develop breathing issues, not realizing it could be the gallbladder (or other abdominal issues).  She is hoping this is her case and the scary breathlessness will cease.  Dr. Vallabh said people Carole's age rarely have pain indicating there is a problem (she has NONE), but a younger person would.   Her antibiotics for the sepsis have created a real problem "digestively" and also a yeast infection in her mouth and throat.  But her fever is down and they are pleased.  So there you have it!   Wednesday is the surgery and we are praying all will go well and her heart can handle it.  I will update then, maybe even have a little stitching to show.

 

Thanks everyone.  Bless you all!

 

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Meeting of the minds

Monday.  Finally.  Two of the surgeons will get together and resolve the confusion of which surgery will be first and by whom.  The second will be the following day and none of us agree with this.  A high risk surgical patient should not be put under two days in a row.  One doctor said the gallbladder removal is not urgent, the other disagrees.  I want to know why she is so short of breath after the first bout with anesthesia.  Did the risk of weakening the heart already start?  We have no answers from anyone. Tuesday is the first surgery.  I have enough Ativan for a few days!  I may take a few of mine to the hospital and talk to the nurse.  They were ordered for Carole to help with the anxiety but of course, the hospital doesn't have any.  There is a large Rite Aid across the street and a Walgreens on the corner.  When my brother worked at the hospital he was always running to one of them to purchase medications.  Now, new owners, new rules.  So since they can't supply her I will ask if she can have one tomorrow since she is terribly upset.  What surprised me was when I kiddingly asked if we could bring our own drugs, the answer was yes.  They are scanned from the Rx bottle, taken to the hospital's pharmacy and dispensed as ordered.  The patient takes their meds back home when they leave.  I don't know if I mentioned that they also do not have Nexium which she needs at night so we took her bottle from home and she is now getting them. 

 

I came across more corner squares waiting to be attached and it was hard to throw them out. 

I also changed the Hannah Haines sampler bag to a stuffed small.  It did not sell as the pouch so maybe this will be more appealing.  Trying to keep busy and get things ready for a sale.

 

I will post surgery results Tuesday at some point, and hope all the prayers and wishes will be answered.

 

Thank you all.

 

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A few good things

I recently came across a few items that I'm happy to have found.  The first is the free color card of Farrow and Ball paint.  No where to purchase locally and quite pricey, but I've always wanted to see their colors.

http://us.farrow-ball.com/colour-card///fcp-product/700011

You can also order up to five wallpaper samples, which I hear is coming back into favor.  The color book fandeck of larger samples, all colors, is $35. 

 

The second goody is from Joanna Gaines Magnolia line of paints.  Her website offers a sample sheet of your chosen color for $2, that easily sticks and peels to all surfaces allowing you to check color on every wall at every light angle.  I love them.

https://shop.magnolia.com/collections/peel-stick

I do love the Shiplap shown here, kind of gray, kind of blah, not pure white.  A whitewash look that is light but not bright.

 

And my sister asked me to look for that sticky green stuff. ??  Of course she assumed I knew, I did not.  She said you knead it and then use a tiny piece on the bottom corners of framed items so they don't shift.  Any item really.  I know there are clear dots of adhesive in the paper craft section of the store, but I did find these.  She claims they have never marked her walls, and I can't say if they or those dots would.  But they work to keep displayed items straight.

 

 

Speaking of her, I went to the hospital this afternoon and straightened a few things out.  After nicely asking for her nurse, and why the leg sleeves were not hooked up to the pump, and why her antibiotics doses were 4 hours late, and why the woman in the next bed is taking over 3/4 of the room, and why there is no chair for her to sit, and why there is no room for the tray table, and why Carole was not given a walker, I decided that waiting over a half hour for this nurse was long enough.  We were there for six hours and still invisible. So I took my notebook and pen, walked to the hallway, and promptly wrote down the phone number of the nurse administrator from the large wall poster, making myself visible to all.  Before I was finished, someone tapped me on the shoulder and introduced herself.  A little out of breath so I'm assuming she came flying down that hall.  I totally understand that some patients need extra attention.  But a new patient should not be dumped in a room as she was for hours without her meds or a walker.  I got what she needed, I got her a new room, I got the medication list corrected, and as I was leaving the IV meds were being hooked to the pole, a full five hours late.  Will I comment to the administrator?  Yes, that our nurse was very busy, meds were late, but when she had the time she fulfilled the patient's needs.  How's that?

 

Carole's friend came to visit and we were talking about how she (Carole) always had cheese in the fridge and it was her favorite indulgence especially at night.  I made the comment that there is a good chance those stones are actually cheese balls.  First time she laughed in a while.  Then I came home and collapsed, ate half of a pizza, and decided to stay home all day on Sunday. 

 

Hope your weekend is a good one!

 

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The daily move

From ER to surgical ward, to ICU, to transitional, to telemetry.  She has been moved daily.  The last room was spacious, quiet, private, but the doctor feels she needs to be closely monitored.  Safer I guess, with what she has been through and her breathing difficulty.  Family doctor came in at 5 am and sat down with her for quite some time.  Explained to her the situation is very serious, there is a slight improvement in the sepsis, but she is a very sick gal.  Regardless, the stones must come out this coming week.  More anesthesia during sepsis?  I'm not a doctor, we trust them (except for the grapeless jackass).  Her breathing continues to worsen and her doc feels it is caused by the sepsis but he ordered Ativan, assuming anxiety is also playing a role.  With all of us having claustrophobia and watching our dad suffocate while an idiot pulmonologist ignored a pulmonary embolism, it's no wonder we panic watching someone gasp for air and especially experiencing it.

 

The sun is out this morning and it will be a beautiful day for a friend's son's wedding.  I haven't sat on the swing or rocker except for a few times, and summer is fading fast.  So I tried to sit and have a quiet morning with a cup of coffee and stayed not even five minutes.  Can't sit still.  I've stopped all projects, they can wait, and except for Carole will try to find some time to enjoy my favorite season which will be over in weeks.

 

 

 

I ordered a few small retired charts from Kathy Barrick's sale here, thought I might even stitch one!  Maybe.

 

Some of us prefer the shade.

 

As for my brother's bite, he is able to close the hand half way, still very painful.  The swelling in the forearm is still prominent and hard.  He was told last week that this could take up to six weeks to resolve, cat bites in the hand are worse and cause stiffness and mobility issues.

 

Thanks again for your support and prayers.

 

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Sorry - me again!

Nervous Mervous.  Me and Monkey Mona (brat Missy who is in here driving me nuts).  When I'm nervous I start many things at one time, make a mess, get upset because nothing is organized or completed, and then throw it all out.  In between the mess, I grab the laptop.  That's you.  Hiya.  One of the things I actually did accomplish was making a box to fit this sampler I plan to sell.  I have searched for weeks and there are no boxes long enough for it without being much too high and wide.  My Amazon shipment came in and I hacked away with glue and tape in hand.  Not pretty, but functional.

Carole is still in ICU and short of breath.  No fluid in her lungs, her heart is causing the problem.  A doctor came in and explained to her that she cannot leave because they are very concerned about the sepsis which is quite serious right now.  Two artificial knees are a huge concern and if they become infected, will need to be replaced.  They still act like anesthesia is not a big deal.

 

The doctor we were told was to perform the GB removal Monday, said he will do it after the stone removal.  The stone removal doctor is off for a week and said the GB will be removed first.  Dammit.  They are both top notch respected surgeons, happy with both, but what the hell???  I am very glad because she is in no condition to be put under for a second time within a few days.  Recovery from this episode is needed.  She has no idea what is going on other than an additional IV in the other arm, trying to get the sepsis under control.  If this does settle in those knees, I don't even want to think about it.  My concern is her breathlessness.

 

In the meantime, my doctor office calls and informs me I must be seen now because the DEXA scan was over the borderline and we must discuss which medication I want.  My hips are fine and the spine is right at the cutoff number between osteopenia and osteoporosis. I bluntly told her that we discussed this, I said from the beginning I will not take meds for this now, and she agreed to try diet if necessary.  Obviously I can't trust her word.  I am tired of being pushed with scare tactics into drugs I do not see the need for.  She's done this with other conditions. But if I want 30 Ativan pills once a year for times such as these, she wants counseling first. I think it's time to move on.

 

Hope your Friday is going swell.

Sorry for the multiple rambling posts.  But it helps.

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Another day

Carole is still in ICU (breathing problems) but will be moved back to her room later this morning.    Over five hours after the 30 minute surgery, nauseated, disoriented, difficulty breathing.  This morning, the anesthesiologist came in to see her and pointed his finger at her saying "this is YOUR problem, YOU are the problem, NOT me.  I did everything by the book and nothing wrong.  This is on YOU.  YOU are the problem."  And they are insisting she go through this again for surgery Monday.  If I was in her room at 6am, this man would be speaking in a higher octave because I would have plucked one of his grapes right off. 

 

I read online that very few cases of this GB removal have been done with local numbing and light sedation for patients at high risk.  I am contacting Cleveland Clinic and the Pittsburgh hospitals to see if anyone there can help.  This afternoon I will talk to the anes. department at the hospital also.  I know there is another doctor that is reasonable and kind, proceeds with the patients' concerns in mind, because I had him.  Then I will ask for the boss.  No excuse for a patient to be talked to like that.  I'm sure he did nothing wrong, other than not taking her concerns and comments about being drug sensitive seriously, but talking to her like that is inexcusable especially when she in no way confronted or blamed him.

 

She will get food for the first time in three days, the jaundice will recede, the sepsis is being treated, the antibiotics will continue.  She deserves a piece of Death by Chocolate zucchini bread which is in the oven right now, okayed by the staff.  Dinner tomorrow will be supplemented by her favorite kugel (low fat cottage cheese and no-yolk noodles).

 

Thank you so very much for the prayers and well wishes.

 

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