Mar 30, 2018

The low down on the lows

Hi.  First, the Tweet Hearts can be found in Blackbird Designs book, For My Friend.  The blue I used was DMC 926 and the wing GAST Sable.
More info about the nephew.
It would take several pages to explain fully.  My nephew has a pump along with a sensor.  He works shifts so although they set the insulin infusion rate, there are obviously times when he is working and not getting enough, sleeping and getting too much.  He adjusts and suspends as needed.  The Tegaderm and glues that he uses to keep the sensor secure to his body do not hold well enough when he perspires.  But even when they do and the alarm sounds, if he is sleeping he does not hear it nor always feel the vibration.  There is no setting to increase the volume. The sensor reading is somewhat delayed and by the time it registers 75 to set off the alarm, he is far lower than that.  It happens rapidly. But even when admitted to the hospital to follow his ups and downs, they could not explain the sudden and severe drops.  Many times the alarm will go off and he is already unable to process his thoughts and react.  The low glucose affects the brain.  This is why he is difficult to handle when trying to administer a remedy.  He also has to deal with ADD and flits from one thing to another, is always in high gear, and that speed prevents him from getting everything being said.  This is why I attend any important meetings with the pump people for changes.  Patience and diligence are difficult and both are necessary to monitor your numbers and swings throughout the entire day, every day.  The newest pump is very sophisticated and would help tremendously, but the contract for his current model is until 2019.  I am trying to get an upgrade outside of his insurance and pay the difference, so far, no answers.  Buying outright is over 10 grand.  To make things even more complicated, for the sixth time, the endocrinologist here that understands the pump, is leaving.  He will need to start over again and drive 45 minutes to a new doctor.  There will be no one locally he can see when he needs help and adjustments, like now.  Many times the disease progression causes these weeks of hell and it takes a while for the doctor to find the right mix for the unit.  He can go for months without incident, then it starts again.  We're hoping that the new doctor will be more of a help and also be sympathetic to his issues.  Until then, his glucose tablets, gels, orange juice containers, and candy will stay on his night stand, but usually he is already too far gone to understand what is happening.  If he happens to awaken during his sleep and is rational, he will drink a box of juice before falling back to sleep.  Eating something sugary or high carb before sleep works for a while, but causes the rapid drop a few hours later.

Until two years ago he was living with his girlfriend and she was wonderful, but they are no longer together.  With Carole's financial situation and also her fears about her heart condition, she wants him to live upstairs.  It's also too scary for him to be alone, he would have been lost years ago.  Since he does all the yard work and maintenance any way, he agreed to stay.
 
We just came back from there, Carole requested we get her a piece of pizza, the first food she has felt like eating in a week.  To me, she looked a little better than yesterday, but oh my that cough is sickening.  She can't lie down at all even with a wedge, the cough is incessant and she has trouble breathing.  So she hasn't really had any rest and is trying to sleep upright.  It's comical, but I made a wide nylon strap with buckle to hold her upright in a chair during her heart issues.  It fits around the chair and across her chest, and that's how she slept since lying down had her gasping for air.  She used a U-shaped travel pillow backward to hold her head up.  So I told her to buckle up buttercup.  It helped before and I'm sure it will now.  It's a sight!  I'm hoping the lack of air is all congestion and not the heart again causing fluid in the lungs.
 
To those of you that celebrate Easter have a wonderful and blessed Sunday.
 
*************************


17 comments:

Margaret said...

Love your two bird finishes! Marly, I'm so sorry your family is going through such tough times health-wise. Such a scary situation for your nephew, and for Carole too. And you with your shoulder. Not good. I hope you all have a happy Easter and that everyone gets better quickly.

Heritage Hall said...


Thoughts and prayers with you and Family.
A very blessed Eastertide.

Truus said...

Marly it is very difficult situation with your nephew and Carole. Do you got any time to take a rest? Hope it will get better for Carole and your nephew. Take care of yourself Marly.
A blessed Easter to you all
Greetings Truus from Holland

Rugs and Pugs said...

Your sister and nephew are lucky to have someone who cares so much. You are a Godsend.
Happy Easter 🐰🐰🐰🐲
Lauren

Rugs and Pugs said...

Oops. Last emoticon was in error and of course I can't go back and correct 🙀

Vickie said...

Oh Marly. Sitting here with this bum shoulder doesn't feel so bad now. God bless you all. Happy Easter.

Mary said...

I agree with Vickie, i strained the muscle in my left shoulder/arm a few weeks back. Luckily not stopping my stitching. I fell off one step! So a sore shoulder/arm is nothing compared to your dilemmas with health matters. I will no longer complain. Happy Easter.

diamondc said...

Marly: You are a very amazing lady, doing what you and your husband do for your family is amazing, not many people would make themselves available as you both do to help out.
It is my pleasure to know you as a Blogging Friend.
Thank-you for being so kind to people.

Happy Easter
Catherine

Diane H said...

Marly, Happy Easter. Thank you for the great lead to the 'senior's clock'. It made the perfect gift for my 91 year old father's birthday. Fingers crossed he remembers to take it out of the box when he gets home. God Bless families!

Dianne said...

So sorry to hear about the diabetic challenges! My son and his wife have not had an uninterrupted night of sleep for 7 years, since their daughter was diagnosed with Type 1 at 18 months of age. 1am is when they get up to check her blood sugar. Anyway, I wondered if your nephew has considered getting a dog trained to sense high and low blood sugar? I think they can tell by smell, but apparently a very effective monitor, and can allert people when there's a problem. Just a suggestion as it seems the situation is very difficult for all. Take care of yourself too!

Dianne said...

And the birdie hearts turned out lovely!💗

~mj~ said...

Oh Marly, you have a very difficult time of it. Sending good thoughts for your sis and nephew...(((hugs)))

Penny said...

Going back and reading previous posts -- I'm so sorry about your sister and nephew. Hoping the situation improves for both. Your finishes are always inspiring - I love the heart shape! Take care of yourself, Marly - wishing you a happy Easter.

Julie - My Primitive Heart said...

Hi Marly,
So very sorry for all that you and your family are dealing with!! I know they must be so thankful for all that you and Mark do for them!! Thank you for your caring hearts!!
Trusting that things improve for everyone!!!! Love those hearts!!!!
Take care and hope you have a Blessed Easter!
Heart Hugs~
Julie

C M Designs said...

My heart goes out to Chris. Carole is so blessed to have your help.....Chris too.
With all of what he has to go through, he still does yard work ? God bless him.
Thinking of you and wishing you and your family a peaceful Easter Sunday.
Charlotte in Va.

Theresa Laboda said...

Wow you have been going through so much. So sorry about your families illness. I hope things get better for all of you. Sending prayers.

Maggee said...

I am so sorry to read about all these troubles for you and your family. I wish that our wishes would make it all stop and be better... My stitching buddy has many a time when she is awakened because her sugar has dropped. It is all a mystery to me, but this post surely explains a lot for us! Big Hugs!

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