Oh my. She is slowly improving, we know she will never fully recover but hoping for improved quality of life however long she will grace earth. It's so upsetting, surprising, and frustrating, with or without advocate. She spoke with her son twice in two weeks, four times with us. When she did answer her cell yesterday afternoon with Mark, he had such a hard time holding it together. Crying and sobbing unable to catch her breath, tremendous pain from clots in a leg that was swollen, undiagnosed, and painful from the beginning. ICU managed her pain well enough to be tolerated and
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forget it. I am so exhausted from searching for help, making calls, now trying to find a hospital sitter which I was told is prohibited. She is allowed one visitor during her stay, no one can tell her who it must be.
One of my orders was delivered today and as usual, not as expected. Zippered pouches from my first order were very similar to todays, a fancy freezer bag with a zipper. My second order (Sunee) was fantastic, heavy, very smooth zipper, side tab, and if there is such a thing, sensual touch plastic (blue with tag). The new claim to be Sunee, but are not the quality of the first order. Returning.
Finally got wired. When I first started wearing these I felt like donning a Stetson and western boots while a device larger than my TV remote hung from a holster. Kept a journal, documented anything that required more effort. Ya know, like being nice to idiots. What a vast waste field that has become. This recorder is only about two inches and is held center chest. Tight tank tops were perfect for keeping wires secure but all I have in my olden days is a man's undershirt in small.
Thanks for sticking around. As soon as we get her home (no idea when) this will be the welcome home giftaway.Have a nice tomorrow.
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7 comments:
Good morning, Marly.
Glad to hear some improvement in Carole's health. I know it has been a struggle for a long time for and with her. God bless both of you.
It would be a great relief to have someone who could be with her 24/7. I guess that would be impossible. So glad she's able to talk on the phone.
You both have been in my thoughts and prayers. Hoping the improvement will continue.
Take care.
Charlotte in Va.
Happy to hear that there is a little improvement for Carole, but praying that they will get her pain down too.
Wishing you both the best and a much better health too.
A big hug and take care Marly.
Truus from Holland
I'm glad Carole has a bit of improvement. I'm ambivalent on if you'd be the best choice to be her sitter. On one hand, you'd be there getting the straight news and be able to ride herd on everything. which would be good as maybe it would be less stress on you. On the other hand, being there, wondering how all is going at home, dealing with Carole in tears and pain, not to mention the expense would not do your own health any favors either. Damned if you do, damned if you don't.
Bummer on the bag order, the one order certainly isn't as nice at the zipper with ribbon like the blue one. Hope you get some good results on the recorder thing and that you don't need to wear it too long. (((hugs)))
Don't you wonder sometimes how we endure and survive? With so many issues her health is precarious, of course, but this whole Covid seclusion business makes it so much worse. No easy answers that's for sure.
I guess that is a Holter monitor? I remember in our early days with these things they were the size of IPads! Heavy, in holsters! HOpe all turns out well, you don't need anything else right now.
Take care, we have sun today!
It all must be so horribly frustrating. I agree with Gail as to the pros and cons of you being the sitter (a very likely choice of course). I continue to pray for all involved and especially that they can find the cause of her swollen and painful leg(s). I am sure they have already ruled it out (and you probably told us that already as well...forgive me, but there's a lot of crap rolling around "upstairs" here these days), but it sure sounds like sepsis to me. It's just wrong that they can't figure out the source.... And you are wired for??? Heart monitoring I assume?? (Sorry if you already told us that as well...yikes...I seem to be missing so much these days.) Hang in there and know that you are in many's hearts, prayers and thoughts. ~Robin~
Prayers for you and your sister
Marly: I am happy Carole is improving even if it is a little that is a good sign.
It is amazing the devices that doctors hand out for monitoring, I hope you get the results you want after wearing this thing.
Too bad about the bags.
Love the Erica Michaels design, I have this one someplace in my stash, I need to stitch it soon.
Have a wonderful evening
Catherine
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