Jun 2, 2021

An end within reach

 but only for this sampler.  Still spinning my wheels and dealing with a patient in constant pain, unable to accept the diagnosis, possibly not survive another surgery, spending hours and hours on the phone for info.  No openings, we must wait another ten days to see a doc at CC.  Today, I found out that the case worker we were referred to, responsible for patient applications to the Waiver program (three requests to her personally within two weeks time), never did.  Damn good thing I called the state agency to check on status this morning.  

Not much more to stitch for a finish on Margret.  I honestly have been wondering why I'm continuing.  A crumpled ball of nerves and confusion and questions is not being calmed by needlework.  I placed a three item order yesterday for a small project and linen piece, only because I was notified that it was back in stock.  We'll see what happens to my mojo in the coming weeks after we see more doctors.  But a large sampler would not be advisable.  Margret's design allowed concealment for a multitude of color and placement errors but the beauties waiting in my stash would not.  

This motif was to be completed in the light brown but when that thread ran out, I saw a needle with pink thread so used it instead.  Not the first time laziness ruled, and these little changes have turned out quite nicely.  

I also need to make a tough decision about the vaccine.  Advised not to, and I fear my reaction would cause another autoimmune to present itself because of my dormant but very high markers, or the fissures on my tongue could worsen and spread to my throat.  Another lock down, I was there before it, and being in and out of all the facilities and each appt, I don't know what to do.  Half of the US is vaccinated, but locally, 90% are without a mask.  That large unvaxxed percentage would have been banned from public not that long ago. 

I don't know what day it is, so I'll just say to have a good one, whatever the hell it is.

**********************

11 comments:

celkalee said...

Your color substitutions look quite nice actually, it adds a dimension that blends so well. The whole situation with your dear sister is so sad, I have no words. The vaccine is a personal decision and I am not sure there are absolutes there. I did vaccinate but my auto-immune condition is mostly controlled right now, I consider myself fortunate. The public is almost cavalier right now, that is true, but you need to protect yourself. Best wishes.

Heritage Hall said...

I pray that solutions for Carole can be found soon without further bringing the pressures upon you that you have experienced. Human error is a poor excuse for the
delays and inconvenience. Your substitutions look lovely . Remember, in those days of
yore there was no DMC shop to get the full range of colors and one picked through one's
basket to find what worked...perhaps that is why those samplers are so charming and
daring of choice. Here is hoping your next project will bring you happy distraction. As for the vaccine, that is something only you can conclude, but prayers are for your protection and well being. Blessings

Rugs and Pugs said...

If only people would just do their job and follow through with what they are supposed to do. So sorry you still can't get anywhere with Carole's treatments.

Jan said...

Such a decision on the vaccine but one you'll have to make yourself. I know some have chosen to not take the shot and they are comfortable moving about in society. My husband and I have had the injections and will be so glad to toss those masks away. I heard on the news tonight that the ones handed out everywhere (paper ones) do nothing to protect, and the ones people make from cotton fabric are also useless.

I think it's wonderful that you continue with your sampler and I also think it looks beautiful, so keep it up with whatever color thread you manage to pick up!!

Hope to hear some positive news regarding Carole's health (am sure you do too). As always, you have to think of yourself too and take care of YOU!
My very est wishes to you and all of your family.

TheCrankyCrow said...

Margret is lovely...and I love the pink blush at the end of that bloom. I have become so frustrated with lack of responsibility (in my book due largely to lack of consequence)...but that has been for a long time now. I have given up thinking "if I did my job like that, I would have been fired on the spot." As for the vaccine...as others have said, it is a decision only you can make and I am grateful that, at least for now, that it remains a choice. As you know, I have auto immune issues too, so the vaccine is especially troubling to me and I came to my decision easily. I have also done a tone of research, but I will not insult you by regurgitating it even in summarily. HOWEVER, I would caution at least one small thing: Before you commit, ask to have your antigens tested to see if you perhaps had it (w/ or w/o symptoms) and, therefore, have natural immunity. More and more studies are coming out saying it can be very harmful for people who have natural immunities to get the vaccination. 'k?? ~Robin~

Truus said...

Your sampler looks lovely. It has that feeling of being very old with these colors.
So sorry to hear about Carole and the communication with the woman.
Under my friends who did have the vaccinations there are several who became ill afterwards. Some only unwell, some being sick for several days.I have problems with my health too and refuse to take them.
I have cyp 450 which means that my liver break down the medicines so they don't work in the right way. This can be tested by a bloodtest.
Take care of yourself too and a big hug
Truus from Holland

Charlotte MacDiarmid said...

I love your "Margaret". So dainty in spots and others bold. So pretty.
The three of us have had the vaccine. Not much of a reaction. I can understand why you're in a dilemma.
I sure do wish some one could help Carole and you.
Life is not easy.........am losing friends my age....others with cancer..one no insurance. Makes me so sad.
Please take care of yourself.
Hugs,
Charlotte in Va.

JustGail said...

Margret is looking good, and the color changes work. IMHO it's an improvement, adding an interesting bit.

Yet another case of people not doing their job regarding Carole's care?! Sadly I can't say I'm surprised, yet I wonder how much is overloaded workers and dealing with health insurance companies (or no insurance) and how much is workers who don't give a sh.. as long as their check comes in.

I got nothing to advise on vaccine for you. I don't know of anyone that had major side effects - that is anything more than feeling bad or very tired for a day or two. DH and I had zero effects after the Pfizer shots. OTOH, I don't *know* of anyone with Sjogren's or any other autoimmune disease either. I sure do wish some good news would come your way to balance out all the crap you've been dealing with lately. (((hugs)))

Carol said...

I wish I could say I'm shocked at the breakdown in the chain of people supposed to be doing their jobs in healthcare, but I'm not. We're dealing with the same things with my father-in-law's healthcare at his Ohio nursing home right now. So very frustrating when you have to take things into your own hands and almost "play doctor."

I can only imagine how hard deciding on the vaccine must be with your autoimmune history, Marly. I found this article that gives one viewpoint. https://www.usatoday.com/story/opinion/voices/2021/03/03/covid-19-vaccine-autoimmune-infection-risk-column/6875616002/

I'm sorry your stitching isn't calming your nerves, but it is certainly looking lovely. Do take care now ♥

Ms Peppercorn said...

Marly, please google Geert Vanden Bossche, DMV, Ph.D., an independent virologist and world-renowned vaccine expert, formerly employed at GAVI, Novartis, GSK Biologicals, and The Bill & Melinda Gates Foundation. He published an open letter to the World Health Organization about his concerns with the way we are vaccinating people during this pandemic. I was lucky enough to contract COVID so I now have the God given antibodies so of course I am not getting the “jab” but I would not get it even if I did not get the virus. There are others that have spoken out before being censored (which is horrifying) but he is easy to follow. I’m sure you saw the local coverage of the Pittsburgh woman who woke up totally paralyzed after her jab. Reports of pregnant women loosing babies at different times of their pregnancies. Children getting Myocarditis who had no heart issues. I personally know a young woman who got her period like clockwork for years and now is off by weeks right after the vaccine. Our government is pushing this vaccine like nothing before but listen to me, the government does not care about your health. Research how many Congressmen and Senators have millions invested in Johnson & Johnson, Merck, etc. and that was before the “Pandemic”. In 2018 Bill Gates warned of a Global Pandemic and put $12 million into research of a viral vaccine. I could go on and on.

diamondc said...

Hi Marly: I hope all the madness ends for you soon, its a shame how things have gone so crazy for you and Carole.
Nice design yahoo the finish line is in sight.
I am not getting the vaccine, I have many friends who have gotten the first shot had many problems from kidney failure, pancreas shutdown, hives, and many other things happening, one ended up in the hospital for three weeks with blood clots, something he had never had before the shot, I am not willing to give it a try.


Hugs
Catherine

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